Journal entries from our Caringbridge site ....
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Hi Everyone,
We have just received a call cancelling Jack's surgery tomorrow due to his pneumonia. I will explain later today but right now I am going to go crawl into bed & have a nap with our sweet boy ...
Love you all,
Steph
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Hi Everyone,
We got a very early call today from the hospital & we went through what I call the 'has your child had' list (again) with the surgical nurse. It's reassuring knowing they are so thorough and yet this is still scary. We are doing well with the reality of treatment, cast and changes to our routine. We have accepted that this is what needs to be done but still ....
What is upsetting is handing our sweet, trusting child over to a room full of people we don't know... yet need to trust. The thought of handing him over & watching someone else carry him down a hall into a strange, cold room full of machines & people in masks is enough to make me not go through with this. Hannah had surgery when she was 2 & I was able to take her into the OR until she was asleep & I pray that I will be able to do this for Jack. He is so little, so sweet & this is so scary .... even when you don't understand. Especially when you don't understand.
We need to call surgery on Thursday for our times: when he has to stop all fluids (he has to have only clear fluids after midnight .... poor dude as he STILL wakes every 3 hours for formula! Mommy & Jack will be napping lots this week to store up energy!), time to be at admitting and estimated surgery time. They try to have all 'young ones' into surgery as early as possible during the day.
We want to thank you all for your never-ending support & love. There will be days ahead that are great & others that are maybe not so much ... it helps knowing that we can share both.
love to you all,
Rich & Steph |
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Guess who's turning one !!
Jack's birthday isn't until the 20th but we had our big double birthday bash for our *small* family last night :) We are so blessed to have the support and love that we have - that is how we make it through these challenges we keep being 'given' :)
Jack was born only 2 days before Hannah & not only was he 'the best birthday present EVER' but he was home in time for her 6th family birthday party last year!
Hannah brought this home from school this week & I think it sums things up perfectly .... I giggled & got watery all at the same time! We have amazing children ....
When I Got My Baby Brother
by Hannah
I have a new baby brother. My mom's tummy got bigger and bigger and out came a baby. Then one day my mom got home. Then a baby was in my house. We named him Jack. I feel happy to play with him. I love Jack.
and we love you all,
Rich & Steph
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Hi all,
Dr. Jaughin's nurse, Brenda, called today with confirmation that Jack's surgery will be on the 18th. It's hard knowing that they had to bump other children ... not only because their families will now have a longer wait but that Dr. Jaughin felt it necessary. I feel grateful and guilty all at the same time - no wonder I'm tired :) We will get the call for his time slot by this time next week.
Our little monkey started to 'crawl' this week! He had been using a stealth roll method (very quiet & fast until he got to where he knew he shouldn't be!) & just this week has modified it to a goofy looking armycrawl/digmygoodtoesin&launchmyselfforward kind of scootch! I have a feeling his cast will not be holding him back either .... As I finished typing the last sentence he's just scootched all the way across the living room & is trying to unplug Richie's computer - Rich's response .... 'You're way too mobile now Dude' (with a laugh to follow!!) We will definately enjoy him moving this week .... go Jack go !!
He's had a good week. He is feeling so much better & is back to keep Mommy busy during the day!
Thank you so much for all the messages, phone calls and offers of help. We are again reminded how lucky we are !
Love to you all,
Steph & Rich |
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