Just Two Little Words

Just two little words ~ Don’t Worry ~ so simple, yet so full of meaning(s).

Don’t worry … does that mean I should ?

Don’t worry … does that mean honest, everything will be all right?

Don’t worry … does that mean just trust, have faith, believe?

Jackjack’s post pelvic osteotomy appointment was yesterday and despite his very loud and sad reaction that made our amazing surgeon feel very, very bad, and every child waiting to see her very, very nervous it sounds like everything is okay. Everything looks good, see you in two months, keep letting him explore as much as he’s able, he still has a long road ahead of him…

Nope, don’t worry about his limp.

Nope, don’t worry about his left foot being on a 90 degree angle to his right.

Nope, don’t worry about his left leg being almost an inch longer.

Nope, don’t worry that we didn’t do an xray “just to check”.

We’ll watch, and we’ll wait and we’ll see … see you in two months, don’t worry.

Ummmmmhhmmm … okay?!

And yet, with just two little words, we have a choice. These two little words give us option(s).

Don’t worry, be happy.

Don’t worry, it is out of your control.

Don’t worry, celebrate every new moment.

Yes, celebrate that your child has overcome challenges that many have not with courage and smiles.

Yes, celebrate every new step your child is taking, even if not entirely “on his own”.

Yes, celebrate that we live in a country with such amazing medical care.

Yes, celebrate that you have the love and support to make it through.

Yes, celebrate.

At this moment, I choose to “just keep swimming”, (we may have watched Finding Nemo more than once over the last year!) due to two very sweet words …

“Don’t worry”

What are you choosing today?

XO,

Steph

Wordless Wednesday - 1st Swing after 13 months casted & braced !!

XO,

Steph

We now have a time ..

I'm never sure if I should feel blessed or sad that they know Jackjack by name okay, yes, and sight .... although with his crazy head of red he can be hard to forget! They are looking forward to seeing us "no later than" 6:30 am. Jackjack will be first case again as his surgery is scheduled to start at 7:40. We have no idea how long it will be as it is partially dependent on his reaction to the anaesthetic and whether or not he has bone growth over the head of the pins.

I'll try & keep my tweets as up to date as I can from my phone & will be able to post a more detailed "How's Jackjack" as soon as he's in a room. Hoping this will be his last surgery for a very, very long time.

xo,

Steph

You tell him ....

that this is his last “spla-spla” for 6 weeks !!! 

After being freed from his last spica cast, Jackjack had trouble getting used to being in the bath. All that time with the only sensation being his cast, it was just too much for his sweet legs to feel. Now? Now we have trouble getting him out of the tub & every body of water holds the possibility of a “spla-spla” ! 

Surgery has been scheduled to start at 8:40 am with his orchiopexy first, followed by his innominate osteotomy. He should be in the OR for 4 – 5 hours & then we have the what feels like forever wait while he is in recovery. After all is okay, he will be moved into his own room & there we will hang until he is ready to come home …. anywhere from 3 to 6 days. Dr. J will insert an epidural & he’ll be slowly weaned off of it & onto additional pain meds in the 48 hours following his surgery to help manage his pain & muscle spasms. 

I am feeing okay at this moment, knowing that we have done everything, absolutely everything, in our power for his hip to heal on its own. I am feeling okay, knowing that Dr. J will be doing everything she can tomorrow. I am feeling okay, with another 6 weeks in a spica cast. I am feeling okay, knowing that this summer our sweet boy will be able to learn to w-a-l-k !! I am feeling okay, knowing that this has been a very, very long year but that soon he will be without a brace or cast!

We will be able to keep all of you, that love our sweet little man, updated before we are settled in his room …. keep an eye on the upper right hand side (above our family picture). Now that Hipdaddy is home he I can get his fancyschancy phone connected & we’ll be good to go …….  so Jackjack can be on his way to WALKING !!!

"Heal, Hip, Heal"

XO,

Steph