Phone calls from week*s* past ....

Our phone has been very busy over the last week, week and a half with amazing news ...

1.   Hannie's heart is functioning well even with a very irregular heartbeat. After reviewing the holter monitor results, Dr. G feels that it is not hanging out too low (bradycardia) or too high (tachycardia) for long enough to be causing her symptoms. We do know that after open heart surgery the need for a pacemaker may present itself in the future but for right now .... her heart is functioning well on its own and has returned to normal size :)

2.   Hannie's sweat test for CF returned .... wait for it ..... N-E-G-A-T-I-V-E  (WOOT! WOOT!). Hannie's result was only 16, with a positive result returning at 60. She has a repeat PFT on June 4 to see if her numbers have risen or fallen as 2 results were borderline and 1 was below. This could be a sign of something going on OR just a function of it being her first time completing a PFT. We are praying that it is just a first time result and that those numbers will go up.

3.  Jackjack's innominate osteotomy has been confirmed for May 1 .... his surgery time will be another phone call right up to the 30th.

4. Jackjack's general surgeon, Dr. B (who is following him for his bowels & "boys"), called yesterday to confirm that they have been able to coordinate with his orthopedic surgeon, Dr. J & both surgeries will be done on the 1st. Jackjack has one "warm weather" testicle & one who likes to hang around (I know, but I got you to giggle!). They will release his left testicle before Dr. J continues with his hip .... which is such a relief.  It is hard imagining him needing another surgery .... that would have brought him up to a total of 6 before his third birthday!

We are still waiting for Hannie's results from Dr. M, her rheumatologist but don't expect them for a few weeks. Several of the tests needed to be sent to a different lab and take awhile to return. Her energy has been steadily increasing in the afternoons & she is trying her very first full day of school today !! What will Jackjack & I do ?????

We will be praying for Stellan who is, at this very moment, having his sweet heart fixed .... will you join us? I am warning you though .... you will fall in love with his adorable face, his story and his amazing Momma !

"GROW, BONE, GROW"

xo,

Steph